And the medical bills start rolling my way.
Please help if you can. Bless.
And the medical bills start rolling my way.
Please help if you can. Bless.
I hadn’t planned to have surgery when we moved to the Chicago area. Unfortunately, my body decided NOW was the time to resolve an issue that I didn’t even know that I had.
A couple of weeks after arriving at my sister-in-law’s, I began having unbearable pain on the left side of my abdomen. At first the pain was just annoying, so I didn’t think much of it. Slowly it became bad enough that I spent most of my time on the couch with a heating pad wrapped around my belly. I began feeling like so much pressure was building up that my body would explode like a macabre pressure cooker. I finally gave in and told my husband that I needed to go to the emergency room (I grew up “learning” that you only seek medical attention if it’s absolutely necessary because healthcare is expensive, yo!).
After almost four hours of blood tests and a CT scan, I returned home with the cryptic knowledge that I had a mass around my left ovary that was three inches in diameter – according to the doctor, “about the size of a clementine orange.” Part of the mass was cystic, with which is unfortunately something I am familiar. The other part of the mass was solid – no telling exactly what it was with only a CT scan. Cue panic. My family has a long history of female cancers, so not knowing what was growing inside of me caused me a great deal of mental discomfort. However, I kept reminding myself of something important – the women in my family are unbelievably strong and always beat cancer. I took a great deal of comfort in thinking of my 11-year-old niece Megan who has beat AML leukemia twice. Yes, we come from strong stuff – if it’s cancer, I’ll beat it!
I had many follow-up appointments, two ultrasounds, and an appointment with an OB-GYN surgeon. All during this time, the pain was so intense that I stayed medicated on pain pills most of the time. Even when I was “numb,” I would lie in bed, roll over onto my left side and feel a hard ball pressing against my insides. To add to this discomfort, the ultrasounds showed that the mass was pushing against my uterus in such a way that my uterus was in an “S” shape, to which I spastically thought, “Hey, maybe I’m turning into Super Girl.” Yeah, not so much.
Thankfully my blood tests showed no markers for cancer which was a shining beacon of relief in my fog of pain and hydrocodone. Still the surgeon laid it out straight – the mass was solid, meaning my body wouldn’t absorb it. I needed to have it surgically removed. Originally my surgery was scheduled three weeks out, but after hearing my pleas about the pain – and having to have an increase in pain medicine – my surgeon arranged his schedule so I could have the surgery as soon as possible.
I was eerily calm about the surgery, much more so than my husband. I’ve had abdominal surgery before, and aside from general anesthesia nauseating me, I had no fears about the procedure itself. As life would have it, what we learned after the surgery was the scary part.
In my surgeon’s words, internally the surgery was “very traumatic.” Before the surgery all we knew was that I had a mass. We didn’t really know what the mass was until he got in there poking around in my guts. Internally very traumatic meant that the surgeon had a lot of work to do. The mass was endometrial tissue that had been growing outside of my uterus, along with scar tissue that my body had developed in an attempt to protect the surrounding organs. The tissue had amassed so much that it fused with my colon. With the intent of removing all of the bad tissue and preserving my colon, my left ovary and fallopian tube were destroyed. I was interestingly okay with this. In my head I was thinking, “I still have my right ovary and uterus, so all is well.” Maybe not so much.
A week after the surgery I had my follow-up appointment with the surgeon to discuss in depth what it all means. The good news, no cancer. The bad news, I have Stage IV endometriosis. Given that my husband and I had been talking about the possibility of having another child, the prognosis is horrible. The surgeon gave me options, none of which are ideal. For temporary relief I can either get pregnant or begin medication that will throw me into menopause. The pregnancy part is risky because given the extent of the endometriosis, I need to get pregnant within six months, and I have only a 10% chance of doing so without medical assistance (such as IVF). The medication that would put me into menopause comes with all of the delightful side effects that “the change” has to offer – hot flashes, mood swings, depression (hello! I’m already mentally ill, don’t need more, m’kay?). These options are considered temporary treatments because after the theoretical baby is born or if I would stop the medication, the endometrial tissue would start growing again every month when Aunt Flo visits.
The last option is permanent and irreversible in that I would no longer suffer from endometriosis pain again, but I would also never have kids – a full hysterectomy. When he told me this, I cried uncontrollably. So many different thoughts crashed through me, all revolving around one main theme – if I have a hysterectomy, I no longer have a choice about getting pregnant. Something about not having a choice in the matter made me feel like I was being psychologically and physically violated by my own body. Unlike other instances, I can’t get away from my abuser because my abuser is ME…well, at least a part of me.
The surgeon wrapped things up by telling me that if I did nothing and just managed the pain, I would likely require surgery again within five years. Not exactly something to look forward to for the future.
Dealing with this has been beyond challenging. I went to the ER on July 21 and had my surgery on August 31 – over a month in pain before I got some relief. I’m still recovering, but the post-op discomfort is a randy party compared to the pre-op anguish. I’m still processing all of it. I foresee more blog posts focused on issues such as this that affect women, and how we deal with them socially and psychologically (because hey, that’s how I psychologically deal with it…I write about it).
For readers of my work, I have been slowing working on projects during all of this, but obviously not as much. I’m also editing and proofreading novels for Booktrope Publishing – an exciting addition to my artistic inclinations. I will post more about those as novels get published. Until then, check out Booktrope’s website for more info on lots of great books.
Blessings and healing to all.
I had every intention to post the second part of my blog series “My Life Beyond Fat.” Unfortunately, my body had other plans.
I have been having severe abdominal pain for a while and ended up in the emergency room a few nights ago. After ER testing and follow-up ultrasound with my doctor, they confirmed that I have a 3.5 inch mass around my left ovary. The mass consists of two simple cysts and one complex, solid cyst that has the features of an endometrioma. I have a follow up with a specialist on Tuesday, which will probably mean an MRI. If it is confirmed endometrioma, surgery is likely along with a biopsy to confirm that it is benign. Until then, pain management…which means lots of pain meds, chamomile tea, laying around, and reading. It also means that I’m getting seriously behind on writing and editing work. That stuff can wait. I want this orange size thing out of my body!
Thank the Goddess we’re in the Chicago area now, close to family who is helping to take care of me. Wowza. My husband suggested that surely it didn’t hurt that much. I suggested that he stand close enough so I could grab his junk and twist it as hard as I could…then he would know exactly how much it hurt. *wink*
I don’t ever remember a time when I wasn’t fat. However, it has taken me over thirty years to type that sentence. When I was younger, I would have been mortified if someone said the “f” word. When it came to my self image, I knew two things when I was younger: I was fat, and fat is unattractive. As many young girls in our culture do, I deduced that I was unattractive. And because of this deduction, I was mortified when someone said the “f” word because they were basically saying I was ugly.
Adolescence is a perilous time. If children can be mean, then teenagers can be downright evil. Along with growing up being told that I was fat (sic ugly), and that I “had such a pretty face if only I could lose weight,” in middle school an older student branded me Shamu. When everyone would snickered, I joined the laughter as if I were in on the joke instead of being the joke. Little did they know that the laughter was merely the embankment for my tears…tears that I would later expel in the privacy of my bedroom.
The media only compounded my debasement. Bear in mind that a significant part of my adolescence occurred in the 1990s during the height of “heroin chic.” As I would gaze longingly at the magazines in the grocery store checkout, I saw no reflection. I could not see myself in those pages. I would look down at myself and silently pray that God could transform me into the gossamer models that seemingly everyone either favored or emulated, sometimes both.
Then there was me. The opposite. Not to be favored. Not to be emulated. Not to be loved.
The media images and name calling built into a gospel cacophony. As in all things, repetition builds fluency, and I soon became an expert in fat and shame.
I will be posting a new video tomorrow, but I wanted to share some news.
As you know, over the past year I have been struggling to get healthy – ever since I got the Type 2 diabetes diagnosis. I’m happy to say that after my latest A1C test, I can officially go off diabetes medication! One less pill I have to take.
It’s not over. I still have to get my A1C checked again in three months to make sure I’m still doing good. A healthy lifestyle doesn’t have a stop time. It’s a life commitment, a commitment to life.
There is no cure for diabetes, there is only control – whether it’s medicine, insulin injections, or “diet” controlled. Educate yourself and commit to living longer.